I am saddened to say we have bad news … again. What felt like a ‘low’ last week has reached a whole new level this week 😦
While we’d hoped all the pain & increased illness with Darin last week was the treatment working hard in his body … after all the tests & scans this week, we found out the exact opposite. The immunotherapy treatment is not having any effect on the cancer in his body … & all the symptoms (pain, fever, shortness of breath, etc.) are actually due to significant spread of the disease. Our worst fears realized! UGGHHH 😦
To say we are discouraged is putting it nicely. More accurately, we are devastated. This news comes as a real blow, that’s for sure. Our hearts are heavy & our spirits are crushed. HOW CAN THIS BE?!?!????? After 5 months on this cancer journey, it feels like we are starting all over again, right back at the beginning … we feel much like this tired, droopy, whithered plant on our deck. Pretty worn out.
However, our oncologist described Darin’s case as “exceptional”… & I agree – Darin is exceptional 🙂 He is amazing in every possible way (not that I’m a biased mother or anything). God has molded him into a sweet, caring, thoughtful & compassionate young man of God, who remains faithful to his true self & his God every day. He stated confidently to me that we still have “all the hope” … & I believe that. We believe that God can & will heal him, whatever that may look like & only in His time. Our job is to wait patiently for that.
Thankfully, in the meantime, we are being offered another mode of treatment . Darin is being removed from the clinical trial of Pembrolizumab & will start on a stronger regimen of something called a ‘biological’ therapy with a drug called Pazopinab next week. It is a pill that he will take orally every day. We should know within 2-4 weeks, whether the drug is working to stop the growth & spread of his tumours.
We continue to hope & pray that the new treatment will work & that we will get our miracle of healing that only God can ordain. Please join in our hope. Thank you to everyone that is praying for us. It means more than you will ever know.